Logo Alliance Sanfilippo and Sanfilippo Syndrome
Alliance Sanfilippo and Sanfilippo Syndrome. Science must lead to cures! when progress is made in research on Sanfilippo Syndrome, the march toward brain medicine accelerates.
K. et G.AIACH.
<< Family Higonnet seeks to bring together families affected by the type C of the Sanfilippo disease worldwide.
Rare Didease Day 2012 : "Rare but strong together"
In its fifth year, Rare Disease Day will seek to draw attention to the importance of solidarity. Solidarity and collaboration amongs patients, families, all stakeholders and at global level. Many events will take place in over 50 countries. More information on the dedicated website www.rarediseaseday.org