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Alliance Sanfilippo and Sanfilippo Syndrome. Science must lead to cures! when progress is made in research on Sanfilippo Syndrome, the march toward brain medicine accelerates.
K. et G.AIACH.
<< The clinical trial of gene therapy SAF-301 for MPS IIIA is launched.
Family Higonnet seeks to bring together families affected by the type C of the Sanfilippo disease worldwide.
The MPS IIIC is a particularly rare form of the disease and the family Higonnet member of Alliance Sanfilippo, has created an association partner, SANFILIPPO SUD, which aims to bring together those concerned. Research teams are working in this area (see in particular the MPS IIIC program of Alliance Sanfilippo ) and families want to be involved to help them in their projects.
Famille Higonnet :
Sanfilippo Sud
Lieu dit Les Planes
82210 SAINT ARROUMEX
France
Email : sanfilippo-sud@orange.fr
Tel: +33 (0) 6 07 15 36 60